1Disability Division Summer Issue August 2020 Disability Division Summer Issue August 2020 In This Issue: Disability Division Mission Statement (pages 2-3) SSSP 2020 Annual Meeting Description (pages 4-6) Welcoming New Co-Chair, Loren Wilbers (page 7) Graduate Student Paper Competition Winner (page 8) Member Announcements and Publications (pages 9-14) COVID-19 and Disability (page 15) Intersectionality and Disability (page 16) Greetings from the Disability Division Co-Chairs Hello Disability Division Members! We hope you are having a pleasant summer. We want to take this opportunity to provide you information on Disability Division news and Annual Meeting announcements! We are pleased to report that Loren Wilbers will be our new 2020-2022 Division Co-Chair. For those of you who do not know Loren, you can learn more about her on page 7. Kate will continue as Co-Chair through 2021, and Justine will return to regular membership. Congratulations and welcome to Loren! We are also pleased to announce the results of a very competitive Graduate Student Paper Award competition. Congratulations to Nan Lin for the winning paper, “Blindness Imagination: Chinese Pre-modern Perspective on Visual Disability” (see page 8). We appreciate all of the graduate students who submitted papers for the 2020 competition. The diversity and quality of the submissions was a real testament to the bright future of our Division. Congratulations, Nan! Our Section members created a great line-up of Division-sponsored sessions for this year’s conference in San Fransico. As always, these cover diverse topics of interest to disability scholars, with many co-sponsored by other SSSP divisions of interest. Unfortunately, the sessions were canceled with the majority of the meeting due to Covid-19. We hope that the 2021 meeting will bring insightful presentations and rich discussion that are a hallmark of our Division Sessions. Kate will be leading the charge to begin planning the conference sessions for the 2021 SSSP Annual meeting. We have held our division’s annual business meeting and are delighted by the range of interesting session topic suggestions! On page 17 you will find a description of the possible directions 2021 will go! We look forward to seeing you next year! Justine and Kate Disability division mission statement The Disability Division is devoted to the critical study of disability in society, including the structural and sociocultural mechanisms through which disability is (re)produced and (re)constructed as an axis of oppression and exclusion. Our concerns are wide-ranging, and include the following: 1. Disability has historically been, and continues to be, overlooked within mainstream sociology. Disability remains understudied and undertheorized as both a phenomenological category of existence and a social category used to disqualify groups of people and deny them access to cultural, economic, and political resources. 2. The historical treatment of people with disabilities and associations of the label disability with disqualification and denial of full citizenship have resulted in a persistent pattern of differential outcomes in many areas, including: housing, income, education, civic participation, voting, incarceration, and self-determination. 3. Disability has emerged as a source of collective identity, around which people have formed multiple social movement organizations that advocate for greater inclusion and social justice for people with disabilities. The disability rights movement , the civil rights movement for people with disabilities, has engaged in significant and meaningful political activities – including nonviolent civil disobedience – as part of this struggle. Counted among their successes are: the enactment of the Rehabilitation Act (1973) and subsequent amendments, the passage of the Americans with Disabilities Act (1990), and the inclusion of the Community First Choice Option in the Affordable Care Act (2010). 4. In addition to advocating on behalf of their own community interests, people with disabilities have participated in and continue to participate in other social movements working in coalition for a more just world. 5. Ableism, like racism, sexism, ageism, heterosexism, and other institutional and structural forms of prejudice, discrimination, and marginalization, has a significant and pervasive force impacting the lives of everyone in society. Further interrogation is needed into the ideologies and practices that sustain ableism, as well as the immediate, intermediate, and cumulative effects of ableism on individuals, communities, and nations. 6. Historical and contemporary (re)presentations of disability and people with disabilities by the dominant, able-bodied culture have dehumanized people with disabilities and rejected their agency as producers of knowledge. As people with disabilities have come to critique and reject these other-made (re)presentations, new forms of disability culture(s) have emerged that (re)claim bodily and emotional performance and assert people with disabilities as experts on their own lives. 7. As a socio/politico/legal category, disability represents an important claim of citizenship on the State for resources, services, protection, and power. Conversely, the State is constantly engaged in renegotiating the boundaries of the category of disability in order to de-legitimate or mitigate these claims. 8. Environments influence and inform the experience of disability and disabling processes. Social, physical, natural, ideological, and geopolitical environments create unique contexts in which specific types of bodies and minds are validated and others are marginalized. 9. The recognition that disability is a social determinant of life opportunities and of health across the lifecourse. Disability shapes individuals’ lives, just like more widely recognized determinants, such as gender, race, ethnicity, and class. 10. Members of the division are interested in how disability intersects with other social characteristics, including but not limited to, gender, race, ethnicity, class, sexual orientation, veteran and immigration status. 11. Our examination of disability as a social characteristic is grounded in social models of the phenomenon, which address segregation, institutional barriers, and discrimination. Although we do not ignore the body in our work, the primary focus is on how societies treat individuals with disabilities and the consequences of that treatment. Our vision of a just world is one where all individuals are supported in their efforts to live to their highest potential in environments that enable opportunity and actively combat all forms of discrimination. Specifically, these environments would afford access for people with disabilities to meaningfully participate in schools and jobs, families, communities, and other social groupings. Our work is focused broadly and seriously addresses both the power of disability as a social category and the lives of people with disabilities and the contexts in which they live them. Within our division, disability is recognized within the social problems framework. Disability is both something that individuals and groups in society produce (through war and work, for example) and construct (through ideas and representations). Consequently, disability is re-politicized, and the prevailing idea that disability is a personal problem is rejected. Examples of some of the topics that our members have explored include: Disability policies, community activism and organization, the intersection of race and culture in the experience of disability, disability and war, the medical normalization of disability, and disability and life course. Bringing the Hope Back In: Sociological Imagination and Dreaming Transformation The Society for the Study of Social Problems 70th Annual Meeting August 7th, 2020 Virtual Meeting “Hope is a decisive element in any attempt to bring about social change in the direction of greater aliveness, awareness, and reason.” Fromm, Erich. 1968. The founding meeting of the SSSP was held at Roosevelt College in Chicago in September of 1951, with a goal to “rescue sociology from the dehumanizing influences of abstract theorizing and fancifully complex research methods” (McClung Lee 1988, 12). Turbulence abounded in the post WWII era: in the aftermath of the Holocaust, in 1951 Special Operations were being run to rescue Jews still in dangerous places; the first transnational television broadcast was aired and reached from San Francisco to Boston; Gay bars won protection from the Supreme Court; Ella Baker ran for the New York City Council; Jacobo Arbenz was elected president of Guatemala (something the U.S. capitalist controlled United Fruit Company could not tolerate); and of course, there was McCarthyism. Sociologists concerned about changing the world saw the need for an organization, a vehicle to mobilize their sociological knowledge and skills. The founders wanted to address various forms of injustice, including sexism and racism. Looking back to the founding, Dr. Elizabeth Briant Lee wrote in 1991, “The Society for the Study of Social Problems (SSSP) was an organization for which the time was ripe.” (Lifetimes in Humanist Sociology, Clinical Sociology Review accessed at: http://digitalcommons.wayne.edu/csr/vol9/iss1/5) We are again living in ripe times. While history is not quite repeating, much of what’s happening, like a Hollywood movie, is quite predictable. The plot is alarmingly similar: Cages, camps, control, callousness, and the breakdown of the climate, community and caring. How did we get here? The year 2020 is a year that begs us to look backwards, assessing the lessons and, through a critical lens, thinking about the work we do and the future we are building through our work. What can history, the history of our organization, help us to understand? How can our history help us to develop dreams for the future grounded in scholar activism that will help us to build futures? We cannot stop resisting, certainly not now. But resistance alone will not create a new world with new possibilities. Resistance will lessen the suffering, for some, but without visions for new worlds, transformation is unlikely. Mobilizing our sociological imaginations we can think again about the work of SSSP and how our collective work has created the SSSP that currently exists. Let’s explore how this current moment, ripe – so so ripe, demands that we dream transformation. What are the pathways we will build to move toward our dreams? How can we build and support solidarity, political engagement, social movements and pedagogies of liberation? What can we do to create structural changes that bend toward justice? Where does our scholar activism, as we live it through SSSP, fit into our dreams of transformation, toward building new worlds? In 2020, you are invited to come together to mobilize our sociological imaginations toward Dreaming Transformation. Let’s come together in the spirit of Dr. Elizabeth Briant Lee and her husband, Al McClung Lee, to explore why we are doing sociology in particular ways. The Lees did not stop with the founding of SSSP, they continued to dream transformation and build pathways throughout their lives. We have that opportunity, to come together and create change. Please join us in San Francisco in 2020 and together we can call upon our sociological imaginations to dream transformation, while building pathways to justice and humanity. The hope, the wish for a better world, and the sociological imagination are linked in our work. As members of the SSSP, let’s talk about possibilities grounded in our dreams and work. Heather M. Dalmage, SSSP President Roosevelt University Virtual Annual Meeting In light of the COVID-19 pandemic, the 2020 SSSP Annual Meeting in San Francisco has been cancelled. Our primary concern is the health and safety of our members. We appreciate the feedback and support that we have received from several members and our Board of Directors. We sincerely appreciate the hard work and dedication of our Program Committee, under the leadership of Co-chairs Tsedale M. Melaku and Barbara Katz Rothman; our Division Chairs; our session organizers; and the Administrative Office staff. They have worked tirelessly to plan the program schedule. Meanwhile, the Board has been meeting regularly via Zoom during this difficult period to ensure the safety of our members. 1/2-Day Virtual Meeting Schedule ½-day virtual annual meeting on Friday, August 7 from 12:00pm–5:00pm (EDT). The schedule of events will include: SSSP Business Meeting 12:00pm-1:00pm Presidential Address 1:15pm-2:15pm Awards Recognition 2:30pm-3:15pm Plenary Pandemic Focused Session 3:30pm-5:00pm This program is offered as a complimentary benefit to current SSSP members. All events will be closed captioned and Zoom will be used as the virtual platform as Zoom follows the latest accessibility standards to ensure that their product is fully accessible to the latest screen readers. If you have any accessibility concerns or questions, please contact IT Specialist Rachel Cogburn at ssspit@utk.edu. Please mark your calendar for this important conference. We hope to see you there. If you have not renewed your membership or joined SSSP, please consider doing so today. Welcome to the new division co-chair, Loren Wilbers! Loren Wilbers University of Wisconsin - Whitewater Dr. Loren is an Assistant Professor of Sociology at the Universityof Wisconsin-Whitewater. She teaches Sociology of Disabilityand coordinates the Family, Health & Disability Studies minorand the Disability Studies Certificate programs. In 2017 she received the University Chancellor’s Award onDisability Concerns. Her research interests include chronicpain and family experiences with disability. She has publishedin Humanity & Society, Research in Social Science & Disability, and the Journal of Social Service Research. She has a forthcomingpublication in Narrative Inquiry in Bioethics and is co-authoron the upcoming edition of the “Introducing Disability Studies” textbook with Ronald J. Berger. Congratulations to Nan Lin, GraduateStudent Paper Competition Winner! Nan Lin - KU Leuven “Blindness Imagination: Chinese Pre-modernPerspective on Visual Disability” Abstract: Disability group in China has been under severe social discrimination and neglect for a long time, but domestic disability study falls way short in addressing the epistemological pitfall. In facing the limited, stagnated medical model of disability studies in contemporary China, it is urgent to challenge the social normalcy and to push a new understanding not through rigid application of western disability discourse that might seem alien to the Chinese cultural environment, but through showcasing interpretations that is culturally close and socially compatible. Mediating on different approaches that have been tested and proposed by previous studies, I made an attempt in this paper to look back to the pre-modern view of blindness, examining its social and cultural fabrication by referring to a wide range of other disciplines such as philosophy, medical science, literature and religion, to explore the interrelatedness between philosophical, ecological, religious ideology that is crucial in shaping the public image of blindness in pre-modern era. I also discussed how the idea of harmony, self and multiple realities embedded in pre-modern view of being in the world can be critically applied to problematize the binary between the sight and blind and possibly enlighten on the path towards a more inclusive and understanding social environment that accommodate all human conditions. The culturally and historically distinct case is not only a practice to question the contemporary social and cultural construction of the blindness, but also to provide an alternative understanding might contribute inspiration and insights to the post-modern disability development. Member Announcements and Publications Mark Sherry- University of Toledo Division Member Mark Sherry, alongside Terje Olsen, JanikkeSolstad Vedeler, and John Erik- sen has co-edited a new book! Disability Hate Speech: Social, Cultural and Political Contexts Routledge This book, the first to specifically focus on disability hate speech, explains what disability hate speech is, why it is important, what laws regulate it (both online and in person) and how it is different from other forms of hate. Unfortunately, disability is often ignored or overlooked in academic, legal, political, and cultural analyses of the broader problem of hate speech. Its unique personal, ideological, economic, political and legal dimensions have not been recognized – until now. Disability hate speech is an everyday experience for many people, leaving terrible psycho-emotional scars. This book includes personal testimonies from victims discussing the personal impact of disability hate speech, explaining in detail how such hatred affects them. It also presents legal, historical, psychological, and cultural analyses, including the results of the first surveys and in-depth interviews ever conducted on this topic in some countries. This book makes a vital contribution to understanding disability hatred and prejudice, and will be of particular interest to those studying issues associated with hate speech, disability, psychology, law, and prejudice. Member Announcements and Publications Mark Sherry- University of Toledo (continued) Part One is entitled “The nature of disability hate speech.” It contains chapters called “Disability hate speech laws” by Mark Sherry and Louise Walker, “Disablist hate speech online” by Mark Sherry, and “Towards a conceptual and experiential understanding of disablist hate speech: Acceptance, harm, and resistance” by Leah Burch. Part Two is “The personal impact of disability hate speech” and it contains chapters the following chapters: “They think they can call me anything” by Armineh Soorenian, “Very bad bedside manner: Medical professionals and hate speech” by Sheri Wells-Jensen and Claire Wells-Jensen, “Everyday ableism and hate speech: A tale of three encounters in one day” by Damien Milton, and “Hate speech and dwarfism: The influence of cultural representations” by Erin Pritchard. Part Three is “Disabilist hate speech within a geopolitical context” and contains “Hate speech targeting Sami people with disabilities” by Line Melbøe and Hege Gjertsen, “Stereotypes fomenting hate: Perceptions, stigma, and real-world consequences for Africans with disabilities” by Mark P. Mostert, “Amputation of disability as hate speech pattern in Poland” by Beata Borowska-Beszta, “Disability under austerity: Do some forms of political rhetoric constitute disability hate speech?” by Lisa Davies, “Hate speech by carers: Exploring an Australian case” by Mark Sherry and Solomon Amoatey, “Hammerin’ Hank, (dis)ablism, racism, homophobia, and hate speech” by Stephen A. Rosenbaum, and “Hate speech as an expression of disablism: An examination of reported hate speech experiences and consequences” by Terje Olsen, Janikke Solstad Vedeler, and John Eriksen Mark Sherry is Professor of Sociology at The University of Toledo, Terje Olsen is Research Director at Fafo Institute for Labour and Social Research in Oslo, Norway, interests include welfare state issues, disability studies, youth research, marginalization, labour market participation, legal rights and access to justice for persons with disabilities. He is Editor-in-chief of the journal Nordic Welfare Research, Janikke Solstad Vedeler is a Senior Researcher at Norwegian Social Research at OsloMet – Oslo Metropolitan University and at the Nordland Research Institute, and John Eriksen is Emeritus Researcher and formerly a Research Director at NOVA – Norwegian Social Research Institute, Oslo, Norway. Member Announcements and Publications Laura Mauldin - University of Connecticut Laura has received tenure and been promoted to Associate Professor of Women’s, Gender and Sexuality Studies, Human Development and Family Sciences, with an affiliation in the Department of Sociology Congratulations Laura! Attribution: Laura Mauldin, Portrait by Michael Ian NYC “They Told Me My Name: Developing a Deaf Identity” in Symbolic Interactions, Authors: Laura Mauldin and Tara Fannon (2020) Abstract: This article examines the process of deaf people coming to identify as culturally Deaf—a distinction typically made in the literature as an identity belonging to those who use sign language to communicate—and how this identity process co‐occurs with other social identities, namely sexuality and race. Through pairing Goffman’s work with perspectives from Feminist Disability Studies, we extend the sociological literature on both identity and disability. To do so, we analyze qualitative data collected through narrative interviews with five Deaf, gay and lesbian individuals with different racial backgrounds. Our analysis surfaces deaf people’s encounters with one another and how, relatedly, becoming Deaf is shaped by Goffman’s concepts of affiliation and obtrusiveness. For example, we show how shifting affiliations occur when transitioning into a minority (e.g., Deaf) culture, through interactions that demand managing the obtrusiveness of multiple intersecting, potentially discrediting, statuses. Our article also reveals a bidirectional relationship between affiliation and obtrusiveness. Member Announcements and Publications Laura Mauldin - University of Connecticut (continued) It’s Not That Way You know, She Has a Good Future”: Women’s Experiences of Disability and Community-based Rehabilitation in Sri Lanka, book Chapter in Research in Social Science and Disability, Volume 11, Authors: Carmen Britton and Laura Mauldin (2019) Abstract: The results support calls to prioritize disabled voices in disability research in the Global South, which is currently dominated by a CBR approach in the name of “development.” These data also show the need to systematically address power relations currently at work in policies, practices, and communities that perpetuate disablement; document the need for communities and research to be more inclusive; and obligate scholars and practitioners to be more aware of how the CBR context may aim for development and change, yet often maintain highly gendered economic, political, and social processes of isolation. This project illustrates the ways in which careful attention to personal stories can illuminate complex socio-cultural processes. The chapter also brings voices of women in the Global South into the discourses on narratives and disability, both of which are dominated by perspectives from the industrialized west Justine Egner - University of Wisconsin La Crosse “We love each other into meaning”: Queer Disabled Tumblr Users Constructing Identity Narratives Through Love and Anger, book Chapter in Research in Social Science and Disability, Volume 11 (2019) Abstract: This chapter extends the scholarly conversation on both narratives and disability by suggesting ways in which counternarratives about individuals with complex intersectional identities can be constructed in virtual communities. In so doing, the chapter brings poorly represented perspectives into discourses on disability and narratives. The study also contributes to the literature on the importance of emotion, specifically by highlighting the deployment of love and anger to counteract experiences of shame and marginalization. Attribution: Justine Egner, Portrait by Jesse Egner Member Announcements and Publications University of Minnesota Press Liat Ben-Moshe - University of Illinois - Chicago Decarcerating Disability: Deinstitutionalization and Prison Abolition Abstract: Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the twentieth century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system. Liat Ben-Moshe provides groundbreaking case studies that show how abolition is not an unattainable goal but rather a reality, and how it plays out in different arenas of incarceration—antipsychiatry, the field of intellectual disabilities, and the fight against the prison-industrial complex. Ben-Moshe discusses a range of topics, including why deinstitutionalization is often wrongly blamed for the rise in incarceration; who resists decarceration and deinstitutionalization, and the coalitions opposing such resistance; and how understanding deinstitutionalization as a form of residential integration makes visible intersections with racial desegregation. By connecting deinstitutionalization with prison abolition, Decarcerating Disability also illuminates some of the limitations of disability rights and inclusion discourses, as well as tactics such as litigation, in securing freedom. Decarcerating Disability’s rich analysis of lived experience, history, and culture helps to chart a way out of a failing system of incarceration. Publication Feature Penguin Random House As part of the 2020 meetings in San Fransico, the Disability Division put together many exciting panels -- two of which focused on promoting the work of disability justice activists. We had a strong lineup of scholars and activists doing disability justice work that accepted our invitation to present and we are disappointed that in- person engagement will have to wait. Alice Wong was slated to present and we would like to feature Alice’s new publication. Alice Wong - Disability Visibility Project Disability Visibility: First-Person StoriesFrom the Twenty-First Century Abstract: One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people. From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love. Disability and Covid-19 When we began to draft this newsletter in late February we couldn’t imagine how many drafts it would have to go through to remain applicable in our quickly changing world; we certainly did not expect to include a section on pandemic resources. While we are disappointed by the cancellation of our in-person meeting and saddened by the stress, pain, and needles loss the pandemic has brought into our lives we are optimistic that it may allow for the opportunity to spotlight the work of disability scholars and activists. We imagine many of our members are having ever-increasing conversations about accessibility at our institutions and engaging in dialogues and disability justice work that focuses on the impact of the pandemic in the lives of disabled people. Below, you will find a few disability and Covid-19 resources that may be useful to our members. Thank you to member Brian Grossman for compiling and submitting these resources! Virtual Panel - titled “Ensuring Health Equity for Persons with Disabilities” on the context of ethics and health rationing protocols during Covid-19: https://www.radcliffe.harvard.edu/event/2020-ensuring-health-equity-personswith- disabilities-virtual Blog Post - Harvard Law Review blog post titled “Disability and Health in the Age of Triage”, Authors: Rabia Belt, Celina Malave, and Camila Strassle: https://blog.harvardlawreview.org/disability-and-health-in-the-age-of-triage/ Magazine Article - The Progressive article titled “Shut Down the Death Traps: COVID-19 is setting people with disabilities back - More than they already were”, Author: Mike Ervin: https://progressive.org/magazine/shut-down-the-death-traps-ervin-200604/?fb clid=IwAR1n1EryrUKOIx9l7hLxfi9no6VjhqCK-2VYlFQhT2vvkmGTpAdmbnYI0vI#. Xt8GV8_2Gus.facebook Statement from the Center for Public Representation, The Arc, and Communication First: https://www.centerforpublicrep.org/wp-content/uploads/FINAL-DisabilityGroup- Press-Release-on-CT-OCR-Resolution-060920.pdf Post from Sins Invalid - Post titled Social Distancing and Crip Survival: A Disability Centered Response to Covid-19: https://www.sinsinvalid.org/news-1/2020/3/19/social-distancing-and-cripsurvival- a-disability-centered-response-to-covid-19 Thinking and Teaching about Disability and Intersectionaility Thank you to member Brian Grossman for compiling and submitting these resources! Ableism in Politics - The Washington Post article titled “Calling Trump unwell doesn’t hurt Trump. It hurts disabled people”, Author: Rebecca Cokley: https://www.washingtonpost.com/outlook/2020/06/16/mock- trump-hurts-disabled/?fbclid=IwAR2hQFgnXI0NdBdtgZSYmIlU 7LjuqrhIC0QIJltD6YBaadp6TMb0a78rjEw Coming out, Disability, and Sexuality - Autostraddle post titled “People Who Helped Me Come to My (Bi)sexual Awakening”, Author: Keah Brown: https://www.autostraddle.com/people-who-helped-me-cometo- my-bisexual-awakening-a-short-thank-you-list/ Disability Justice and Abolition- Article from the National Lawyers Guild titled “Disability Justice and Abolition”, Author: Katie Tastrom: https://www.nlg.org/disability-justice-and-abolition/ Covid-19, Institutions, and Disability Rights - Post on Disability Visability Project titled “Freedom for Some is Not Freedom for All”, Author: Alice Wong: https://disabilityvisibilityproject.com/2020/06/07/ fre edom-for -some-is-not -freedom-for-all/ We have begun planning the sessions for the 2021 SSSP Annual meeting in Chicago. We have utilized our business meeting and email suggestions to plan sessions for the following year’s conference. We will have 2-3 thematic division sessions, 6-7 Co-sponsored sessions, and one virtual session. Kate, Loren, and the organizers are currently working out the details. Themes we will explore in next year’s meeting include: Disability Revolution, Disability Justice, Beyond ADA 30, Impact of COVID-19, Disability and Intimate Citizenship, and Disability and Family Care. 2021 Society for the Study of Social Problems Theme: Revolutionary Sociology: Truth, Healing, Reparations and Restructuring Don’t Forget to Find Us on Facebook and Twitter! https://www.facebook.com/SSSPDisability/ @SSSPDisability